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Brain Injury Inspirational Photos
Caregiving with Dr Kelly Orr
Building Strong Relationships in the Brain Injury Community
By Michael Idell
Brain Injury Radio with host Michael Idell

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Education about Brain Injuries
Our Stories
Photos
Time for Change
Worldwide Brain Injury Skype Calls
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Brain Injury Inspirational Photos

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Caregiving with Dr Kelly Orr


"Every caregiver has been there: completely stressed, at our wits' end, wanting to scream or laugh or cry (or all three). And while it's nice to imagine that there's some magic way to make all that tension vanish, caregivers know better. Caregiving is stressful, day in and day out. There's no quick and easy cure for that." (quoted from Caring.com.Caregiving and Stress, May 28,2013)

Building Strong Relationships in the Brain Injury Community

Last month we discussed the relationships we already have in since our brain injuries but what about building new ones? Questions for the night=
*What are we looking for as individuals? 
*Can we find love? 
*Where do we go? 
*What do we do? 
*Who understands? 
*What's better or worse? 
*Common problems? 
*Who can we talk to? 
*How have our experiences gone? 
*What can we change? 
*What has worked for you? 
*How can we help each other?
Impacts of brain injury to discuss about relationships 

By Michael Idell

Friends are like Angels who lift us up onto our feet, when our wings have trouble remembering how to fly.~Unknown 
 
Before you ever know how to fly, you must first learn how to fall ~Michael Idell
 
Expression of compassion for loved ones should never be overestimated. Never hold back thankfulness to the people you care about. That sign of good nature within you should be learned by others. ~Michael  Idell 9/16/2004
 
Don't live your life to get what you can benefit from only.

Brain Injury Radio with host Michael Idell

Building Strong Relationships in the Brain Injury Community - with host Michael Idell





Ben Pohl - Amazing brain injury story

Dear Mr. Idell,
 
 After reading through your support website, I know that I am contacting the correct organization. My name is Ben Pohl and I have been searching America for an brain injury organization to assist with getting the word out.  I would like to help your organization as I am a individual with a disability.  Here is a link to a recent professional news story which was done on my disability in Chicago.
 
LINK: http://www.youtube.com/watch?v=ppKqufDBrgU

Upcoming events in NYC and Miami

  • Group: Friends of SharpBrains.com: Innovation to Enhance Brain Fitness Across the Lifespan
  • Brain Talks Next Week in Manhattan (in English) and Coral Gables (book launch in Spanish)

In case you live by New York City or Miami, let me share these two upcoming events that may be of your interest. I'll will be giving two talks open to the public, one in English (Manhattan) and one in Spanish (Coral Gables).

1) Mid-Manhattan Library Next Monday @ Manhattan: How Can We Invest In Our Brains to Boost Innovation and Resilience?

Upcoming events in NYC as of 2/21/2014

Michael W Idell Upcoming disability events around New York City
Front Door Policy presentation February 26
The Metropolitan Parent Center of Sinergia will host a FREE presentation by the Office for People with Developmental Disabilities Front Door Initiative
for individuals who are seeking services for the first time or who are interested in modifying current services.
You will learn about the three-step process necessary to be able to use the services:                                                                  

Nationwide Brain Injury Skype Calls

I would like to ask all our members of what they feel are the most devastating effects from their or their loved ones brain injury? 

If anyone would like to join our call, please create a Skype profile and message me with your name: michaelidell@asbisg.org. No camera is needed. 
 
Our Skype name is ASBISG


https://www.facebook.com/ASBISG.ORG
 
 
 

 

Brain Injury Awareness Month is March

March was Brain Injury Awareness month but that's not where our work ends. Some people in the community have gotten upset with me because I asked what happened? We need to stick together and communicate for a worldwide cause. This has created friendships and bonds between many of us we have kinships with. I do not think thatwe should have to communicate everyday as we all have our own private lives offline but it is nice to ask how are you, have contact, and catch up with our daily lives. We have a beautiful bond together, we shold all continue to remain a family in this community, regardless to where we live.

Disability Community Remembers George Hodginsand Other Disabled Victims of Domestic Violence

From:Nadina LaSpina
Disability Community Remembers George Hodginsand Other Disabled Victims of Domestic Violence
New York, NY – Local disability rights advocates will be holding a candlelight vigil to honor the lives of disabled people murdered by their families and caretakers. The vigil will be held on Friday, March 30th, at 7PM in Union Square, southwest side of the park. This is part of a nation-wide Day of Mourning, during which disability rights activists in cities across America will hold events to remember members of the disability community whose lives were lost to domestic violence.

Worldwide Brain Injury Skype Calls

Worlwide Weekly Brain Injury Skype Call
Topic of the week: Patience for Self Improvement.
How much time do we spend listening?
How much time do we think we will improve how we use our time?
How much do we act on changing the way we think or view ourselves?
How can we judge ourselves, instead judging others?
 
Believing in ourselves and not making any changes to become better is not improving, its failing. Not moving forward is stagnance. We should grow. That is moving forward in your life. ~Michael W Idell

APA Definitions of PTSD

The American Psychiatric Association’sDiagnostic and StatisticalManual of Mental Disorders, Fourth Edition, Text Revision(DSM-IVTR) (1994) defines PTSD this way: 
 
 
A. The person has been exposed to a traumatic event in which both of the following were present:
1. The person experienced, witnessed, or was confronted with an event or events that involved actual or  threatened death or serious injury, or a threat to the physical integrity of self or others.
2. The person’s response involved intense fear, helplessness, or horror.

PTSD and Brain Trauma

 
 
With consideration amung as a survivors andcaregivers we have to be considerate of the affects some of us may beexperiencing.

Posttraumatic stress disorder (PTSD) is a broadcategory that applies to people who have been severely traumatized at one ormore times in their lives; at present, they are not functioning effectivelybecause they have not integrated the trauma and laid it to rest. The cause isexposure to a situation perceived to be threatening to oneself or one’s lovedones.

DOL companionship changes!


We have ANOTHER opportunity to make our voice heard on the proposed DOL companionship changes!
 
We have another opportunity to make our voices heard!On March 20th, the House Subcommittee on Workforce Protections will hold a hearing on the Department of Labor’s proposed companionship rule changes (Ensuring Regulations Protect Access to Affordable and Quality Companion Care). The disability community needs to make sure that these committee members know our concerns! We have set up an alert so you can send information to the chairman, ranking minority member and key staff.

ACTION ALERT! Sign On Letter on the Companionship Exemption

From: Bruce Darling
ADAPT and several other national disability-led organizations have put together a sign-on letter urging Department of Labor Secretary Solis to not adopt final regulations until she has convened a meeting of all interested parties to identify ways to enhance attendant wages and benefits as proposed without potentially eroding the availability of essential long term services and supports.  The White House has reached out to us and is setting up a meeting for us to share our concerns this Friday.

MOVIES AND DISABILITY

MOVIES AND DISABILITY
 
Watch Ben's Movie
Ben Trockman was an athlete and competed in motocross races for years. But things changed during a 2006 race when he crashed on his motorcycle and the resulting spinal cord injury left him paralyzed.
Read Ben's story and watch his movie:
http://www.easterseals.com/site/R?i=__GPtLmOI0A5lxX41MpKrw
After months of intensive rehabilitation during his junior year of high school, Ben longed to return to his hometown of Evansville, Indiana. He started intensive physical therapy at Easter Seals.

Action Alerts

From:Bruce Darling
BACKGROUND
The Department of Labor (DOL) has proposed changes in federal labor rules that, although well-intentioned, will have a negative impact on people with disabilities and most seriously impact people who have the most significant disabilities who rely on Medicaid home and community based services to be independent.
Labor advocates have urged people to support these rules which are intended to assure that attendants get paid minimum wage and are paid time-and-a-half for overtime work.

MARCH IS BRAIN INJURY AWARENESS MONTH

 
www.drnicolemeastman.com

Hello,

My name is Dr. Nicole M. Eastman and I sustained my traumatic brain injury on December 15, 2010. I was on my way to work when my car was hit by a semi truck on I-696 E near the Van Dyke exit at approximately 65 miles per hour. The initial impact was from behind, which sent my car spinning in a counterclockwise direction. I was then hit in the driver's side, I ...lost consciousness, went under the trailer of the truck per my witness, and there was evidence of two other points of impact on my Chrysler Sebring.

Here's a list of Famous People who, like us, have suffered a TBI.

  • Just proves that WE ARE NOT ALONE and that TBI DOES NOT DISCRIMINATE. Its an interesting read, and the last name (I purposely put there) was shoking since its personal to him and his family....read on
  • Amy Davis – Miss Utah 2004
    (Cheerleading accident -2001) Frontal Lobe Damage; balance, coordination, depression, focus.
    Chosen brain injury education, prevention and support for her main goal as Miss Utah.
  • Barbara Mandrell – Country Singer
    (Car Accident – 1984) Head trauma; confusion, agitation, rage.
  • Bob Woodruff – ABC News Correspondent

10 Signs of Caregivers Stress

10 Signs of Caregivers Stress:
 1. DENIAL-about the illness and its effects on the person who's been diagnosed.
 "I know Mom's going toget better."
 2. ANGER - at the person with the illness or at others who don't understand what's going on. "If he asks me that question again,I'll SCREAM!"
 3. SOCIAL WITHDRAWAL - from friends and activities that once brought pleasure. "I don't feel like visiting them again."
 4. ANXIETY - about facing another day and what the future holds.

Tools for Implementation of Health Homes

Please share this info with others you think may benefit from this information regardless if they live in NY or not.

The New York State Department of Health will be presenting a webinar On February 28, 2012 entitled "Tools for Implementation of Health Homes."

The discussion will include: an explanation of the roles of designated Health Homes and Managed Care Plans, the steps that need to be taken to implement the new program, an overview of model contract language, how to bill and receive payment for services, the care management and quality metrics used for reporting; and a self assessment tool that will be used for evaluation.

SOME HELPFUL INFORMATION, RESOURCE FOR PEOPLE WITH DISABILITIES and SENIORS

Other summer Camp Guide 2012Please share our Camp Guides as well-thanks!!http://www.resourcesnyc.org/4000-2011-special-camp-faircamp-directory-pdfGary S.

Service Dogs and Emotional Support DogsNew York Area Assistance Dogs is a newly formed  coalition of people who use service dogs, emotional support dogs in housing and those who support them. Our membership consists persons who use task traned service dogs or emotional support dogs or are considering doing so, family members, and health care providers.

Traumatic Brain Injuries: Effects of damage to different lobes of the brain

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Traumatic Brain Injuries: Effects of damage to different lobes of the brain
Brain Injury Attorney Eric Ratinoff talks about traumatic brain injury - an area of personal injury he is proud to represent. He is always looking for opportunities to learn and share education on th...

Overview of Traumatic Brain Injury (TBI)

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Overview of Traumatic Brain Injury (TBI)

Overview of Traumatic Brain Injury (TBI)

Understanding Traumatic Brain Injury

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Understanding Traumatic Brain Injury
This video discuss traumatic brain injury. It is part of the DVD series "Understanding Brain Injury" created by Shepherd Center. Visit braininjury101.org to view the entire video series.
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Day in the Life of a Traumatic Brain Injury Survivor

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Day in the Life of a Traumatic Brain Injury Survivor
Christina was injured on September 12th, 2005, when her head came into contact with a semi-trailer truck. She suffered a severe, traumatic brain injury. A 60-minute video of Christina (post-injury) en...
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Can the brain heal itself?

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Can the brain heal itself?
Ever wonder if the brain is powerful enough to heal itself? Find out how University of Auckland researcher, Professor Winston Byblow, is investigating ways to improve recovery after a stroke—currently...
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BRAIN APOCALYPSE! Watch This Video, It Might Save Your Life!

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BRAIN APOCALYPSE! Watch This Video, It Might Save Your Life!
Football hits to the head, blast injury, concussion, smoking, drug abuse, overweight, stress, poor diet, sleep apnea, diabetes and depression - see what the effects are on your brain. The quality of l...
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Traumatic brain injury training for caregivers

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Traumatic Brain Injury Training for Caregivers
The training for Caregivers of Individuals living with TBI - Full-length version includes Introduction, Modules 1-5, and Conclusion.

Famous brain injury survivors!

Fibromyalgia and brain injury

 I'm sure people wonder the same thing so I have some research:

Fibromyalgia (FM) is a real and sometimes disabling condition that was first recognized and named by doctors of rheumatology, probably because it is characterized by widespread chronic pain and stiffness, numerous chronic tender points (more than 11 of 18) and chronic fatigue with exertion intolerance reminiscent of arthritis and autoimmune disease. Other typical symptoms include disordered or unrefreshing sleep patterns, headaches, mood or cognitive complaints (such as "brain fog"), irritable bowel syndrome, and other types of autonomic nervous system dysfunction.

CONGRESSIONAL BRAIN INJURY TASK FORCE


Approximately 1.4 million Americans experience Traumatic Brain Injury (TBI) each year and an estimated 3.2 million Americans are living with long-term, severe disabilities as a result of brain injury. Another 360,000 men and women are estimated to have been inflicted by a TBI in the conflicts in Iraq and Afghanistan. The national cost of TBI is estimated to be $60 billion annually. That is why I founded the Congressional Brain Injury Task Force in 2001. Co-Chaired by Rep.

Children's Specialized Hospital - Hope, Healing, and Excellence in Pediatric Rehabilitation

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Children's Specialized Hospital - Hope, Healing, and Excellence in Pediatric Rehabilitation
Nicole Ivanitski-Wight

Here is a video my family was a part of to help the hospital we are with. The first one is not a brain injury incident, but the middle story is, and ours is last.

Remember

Remember
 
I began writing this because it’s the easiest way I can express the way I feel. I started writing this to be a poem of some sort. Instead, I wanted it to just flow instead of being too thought out. I have thought of these things here and there over the past year and wrote them down. Now I want to share it with you. Especially tonight..
_______________________________________
 
People make mistakes their entire lives. I have and I know I have. I have made a number of mistakes. I am learning as a human being I will continue to make mistakes.

My story

Hi! Im Melanie-
Im from Lufkin Texas. Well I really don't remember it and Im thinking that is pretty normal, and I'm glad I don't so I can tell you what the person who was also in the car accident told me.
I happened to be going through a seperation/divorce with my husband and have two children- Holly 11 and Hunter 17.

During this time we had moved and were living alone together in another house. I was dating another man whose name was Shane.

We happened to have went to a restaurant/bar the night of the accident and my children were at their Dads.

Changing my life

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Benevolence - Michael Idell
My brain injury story and belief
This was for a non denominational Christian church in Manhattan I went to. 

Wonderful member of our brain injury group on Facebook!

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Jacy Good on Oprah April 30, 2010
Jacy Good










“The level of service at A Simple Brain Injury Support Group is fantastic. Having been a client for many years, I am consistently impressed by the professionalism of everyone I have come in contact with. Thank you!” 
 
“In this day and age, it’s hard to find people you can trust. A Simple Brain Injury Support Group was recommended to me by a friend, and now I know why – the quality of help I received was outstanding. Keep up the good work!”

Tell the US Department of Labor to work with the Disability Community!

The Department of Labor (DOL) has proposed changes in federal labor rules that, although well-intentioned, will have a negative impact on people with disabilities and most seriously impact people who have the most significant disabilities who rely on Medicaid home and community based services to be independent. 

Labor advocates have urged people to support these rules which are intended to assure that attendants get paid minimum wage and are paid time-and-a-half for overtime work. The disability community recognizes the invaluable role that attendants play in supporting the independence of people with disabilities and has advocated for increased funding for attendant services to improve wages, however the way DOL is implementing this rule change will have a serious negative impact on people with disabilities and promote unwanted institutionalization.

DISCRIMINATION against people with disabilities

Amendments Put Americans with Disabilities Act Back on Path of Tackling Discrimination

COVER STORY

The Americans with Disabilities Act (ADA) was signed into law in 1990 with the stated purposes “to provide a clear and comprehensive national mandate of the elimination of discrimination against individuals with disabilities” and to “provide clear, strong, consistent,enforceable standards addressing discrimination against individuals with disabilities.” Employers were guilty of discrimination by, among other things, failing to make reasonable Accommodations to the known physical or mental limitations of applicants and employees.

College Composition about brain injury education - 192/240 (B!!!)

Traumatic Brain Injuries
How can you be disabled? 
Michael Idell
College Composition II

6/19/2011    
      Traumatic brain injury affects millions of people worldwide and there should be a national educational campaign to raise awareness and knowledge. There is a need to receive proper education and the right way and wrong way to view brain injury. Misunderstandings of traumatic brain injury cause grief, ridicule, hinder proper medical treatment, and can ruin the lives of many innocent survivors and caregivers.

Identifying Negative Thoughts and Irrational Beliefs

Identifying Negative Thoughts and Irrational Beliefs


Many of the thoughts that automatically enter our minds are negative, irrational, or unrealistic. Although they may seem completely valid as they are running through your head, automatic thoughts can be very deceptive.
Being able to identify these thoughts can help you learn how to control your emotions. To change negative thoughts, you first have to gain an understanding of your own specific thinking patterns.

Defining Optimism and Pessimism

Amy's Story

Hello, 
I am Sue Root I am 45 years old single mom.  I have three children ages, 9, 10, and 17 and I live in Central Florida, south of Daytona Beach.  Amy is my second child and is 10 years old.  Currently my youngest, Noah, and Amy Sue live with me.  My oldest daughter is struggling with life at 17 years old and bouncing around ...making some bad d...ecisions, and desperately mourning her sister as she used to be!Our story began on January 24,2010 when my little girl, Amy Sue, was 8 years old.

I want to help. I hope I can.

I truly have a deep compassion for all of you, your accomplishments, and goals. I hope you all know where my heart is and I want to continue to help any of you, in all realms, any way I can to achieve those goals. I pray and perceive after dying 6 times in 2003, I was kept here to continue helping people and want to inspire you all. We are all here together and we should be very proud to still be alive. Thank you for making me honored to be in your lives.
Michael W. Idell

Michael Idell's Story

Almost dying 6 times on 10/12/03, it changed my life forever. I was in a automobile accident with a friend. My friend broke his leg in 5 places and left the hospital in a week or so. Luckily he ended up alive! I had fractured both wrists, both ankles, 8 ribs, and my skull. I was supposed to be in the hospital for 2 years but I recovered and I was out in 3 months. We were both totally blessed!

Since, I worked as Event Coordinator for the Council for the Head Injured Community (CHIC) through the Brain Injury Association of New Jersey and also worked at Hartwick at Oak Tree Extended-Care Unit of Johnson Institute in Edison, NJ as a Volunteer Recreational Therapist - providing treatment services and recreation activities for individuals with disabilities or illnesses.

Hate Crimes Against the Disabled


Hate Crimes Against the Disabled

Michael Idell

Kaplan University

 Survey of Social Problems

8/13/2011


      Socially there is a lack of education and discrimination about people surviving, experiencing, or understanding of brain injuries causing hate crimes. Traumatic brain injury affects millions of people worldwide and there should be a national educational campaign to raise awareness and knowledge to avoid these crimes from happening. Misunderstandings of traumatic brain injury cause grief, ridicule, hinder proper medical treatment, and can ruin the lives of many innocent survivors.
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